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	<title>Comments on: A Clinical Trial Database On The Internet?</title>
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	<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/</link>
	<description>News, Comment and Conversation</description>
	<pubDate>Mon, 15 Mar 2010 02:02:20 +0000</pubDate>
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		<title>By: Carolyn K</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-21599</link>
		<dc:creator>Carolyn K</dc:creator>
		<pubDate>Mon, 08 Oct 2007 15:35:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-21599</guid>
		<description>Yes, of course there shhould be ALL information available.</description>
		<content:encoded><![CDATA[<p>Yes, of course there shhould be ALL information available.</p>
]]></content:encoded>
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		<title>By: mike mikowski</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20367</link>
		<dc:creator>mike mikowski</dc:creator>
		<pubDate>Mon, 24 Sep 2007 15:40:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20367</guid>
		<description>I know this will sound unbelievable but if you read and apply

the simple scientifically proven techniques in the book, "A Cure

for All Diseases"  you will experience that almost all pharma-

ceuticals are unnecessary. Remove disease causing industrial 

age chemicals from your body instead of taking drugs whose

side effects cause more harm.Cure yourself,</description>
		<content:encoded><![CDATA[<p>I know this will sound unbelievable but if you read and apply</p>
<p>the simple scientifically proven techniques in the book, &#8220;A Cure</p>
<p>for All Diseases&#8221;  you will experience that almost all pharma-</p>
<p>ceuticals are unnecessary. Remove disease causing industrial </p>
<p>age chemicals from your body instead of taking drugs whose</p>
<p>side effects cause more harm.Cure yourself,</p>
]]></content:encoded>
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	<item>
		<title>By: Grazia</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20344</link>
		<dc:creator>Grazia</dc:creator>
		<pubDate>Mon, 24 Sep 2007 08:30:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20344</guid>
		<description>YESSSSS!!!!!!!!!!!!!!!!</description>
		<content:encoded><![CDATA[<p>YESSSSS!!!!!!!!!!!!!!!!</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: thunderrun</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20324</link>
		<dc:creator>thunderrun</dc:creator>
		<pubDate>Mon, 24 Sep 2007 01:56:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20324</guid>
		<description>No company has the right to put the lives and sanity of people at risk to "turn a buck".  People have the right to full disclosure of all information regarding any form of treatment.  These drugs are no exception.</description>
		<content:encoded><![CDATA[<p>No company has the right to put the lives and sanity of people at risk to &#8220;turn a buck&#8221;.  People have the right to full disclosure of all information regarding any form of treatment.  These drugs are no exception.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Lee</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20236</link>
		<dc:creator>Lee</dc:creator>
		<pubDate>Sat, 22 Sep 2007 16:33:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20236</guid>
		<description>I help children who have been told that they have ADD/ADHD.  I work with parents, educators and health care professionals, providing information so they are able to make the best decisions for the health and well being of these children.  

I ask them several simple questions. "Do you believe your son/daughter has a Mental Disorder?"  Over 90% respond "NO."  They are told that ADD/ADHD is a Learning Disability or a Learning Disorder, when in fact ADHD is a Mental Disorder (314 of the Diagnostic and Statistical Manual of Mental Disorders).  

The public needs to know the truth.</description>
		<content:encoded><![CDATA[<p>I help children who have been told that they have ADD/ADHD.  I work with parents, educators and health care professionals, providing information so they are able to make the best decisions for the health and well being of these children.  </p>
<p>I ask them several simple questions. &#8220;Do you believe your son/daughter has a Mental Disorder?&#8221;  Over 90% respond &#8220;NO.&#8221;  They are told that ADD/ADHD is a Learning Disability or a Learning Disorder, when in fact ADHD is a Mental Disorder (314 of the Diagnostic and Statistical Manual of Mental Disorders).  </p>
<p>The public needs to know the truth.</p>
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		<title>By: K. Sweigart</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20199</link>
		<dc:creator>K. Sweigart</dc:creator>
		<pubDate>Sat, 22 Sep 2007 06:31:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20199</guid>
		<description>Of course YES!  The TRUTH needs to be known -- whatever that truth may be.  The question should be: why are the pharmacological companies, FDA, government officials and others NOT interested in ALL the data and ensuring the full truth is known?  Perhaps there are some vested interests here?</description>
		<content:encoded><![CDATA[<p>Of course YES!  The TRUTH needs to be known &#8212; whatever that truth may be.  The question should be: why are the pharmacological companies, FDA, government officials and others NOT interested in ALL the data and ensuring the full truth is known?  Perhaps there are some vested interests here?</p>
]]></content:encoded>
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	<item>
		<title>By: Charlene</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20198</link>
		<dc:creator>Charlene</dc:creator>
		<pubDate>Sat, 22 Sep 2007 06:07:42 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20198</guid>
		<description>An Absolute YES</description>
		<content:encoded><![CDATA[<p>An Absolute YES</p>
]]></content:encoded>
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	<item>
		<title>By: Bhanuprakash Panchanahalli</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20162</link>
		<dc:creator>Bhanuprakash Panchanahalli</dc:creator>
		<pubDate>Fri, 21 Sep 2007 21:39:12 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20162</guid>
		<description>An Absolute YES!</description>
		<content:encoded><![CDATA[<p>An Absolute YES!</p>
]]></content:encoded>
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	<item>
		<title>By: Aa'Ishah Salaam</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20132</link>
		<dc:creator>Aa'Ishah Salaam</dc:creator>
		<pubDate>Fri, 21 Sep 2007 16:21:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20132</guid>
		<description>I get tired of the large pharmaconglomerates hiding information that can cost lives.  Full disclosure should definitely be mandated.</description>
		<content:encoded><![CDATA[<p>I get tired of the large pharmaconglomerates hiding information that can cost lives.  Full disclosure should definitely be mandated.</p>
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		<title>By: Cheryl-Anne</title>
		<link>http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20115</link>
		<dc:creator>Cheryl-Anne</dc:creator>
		<pubDate>Fri, 21 Sep 2007 12:58:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.pharmalot.com/2007/09/does-a-clinical-trial-database-belong-on-the-internet/#comment-20115</guid>
		<description>The only obstacles we have to curing disease are the ones we put in place ourselves.

As a cancer patient myself I have both benefited and been harmed by clinical trial data.  When the information is not easily accessible to the buying public (the patient) then companies can "spin" data anyway they want.  This is very harmful to the patient and interferes with the patients ability to be fully informed about their condition and treatment.  It therefore interferes with patients autonomy.  

Furthermore, it impedes the entire research process and I would even argue that it derails research to the point where time, effort, energy and resources are wasted on worthless "make work" projects.  This adds artificial costs to the system which in turn drives up the costs of drugs in the process.

It should be completely embarrassing to some of the dimwits driving these arrogant attempts at cover ups and lies to remember that the truth always outs.

So, yeah, bring on the full disclosure.  The only person I want to decipher my clinic trial data with is my doctor  - he is the only one who is as vested in my wellbeing as I am.  

The "us" versus "them" needs to stop, it is all "we".

What a wicked web we weave, when OURSELVES we wish to deceive...</description>
		<content:encoded><![CDATA[<p>The only obstacles we have to curing disease are the ones we put in place ourselves.</p>
<p>As a cancer patient myself I have both benefited and been harmed by clinical trial data.  When the information is not easily accessible to the buying public (the patient) then companies can &#8220;spin&#8221; data anyway they want.  This is very harmful to the patient and interferes with the patients ability to be fully informed about their condition and treatment.  It therefore interferes with patients autonomy.  </p>
<p>Furthermore, it impedes the entire research process and I would even argue that it derails research to the point where time, effort, energy and resources are wasted on worthless &#8220;make work&#8221; projects.  This adds artificial costs to the system which in turn drives up the costs of drugs in the process.</p>
<p>It should be completely embarrassing to some of the dimwits driving these arrogant attempts at cover ups and lies to remember that the truth always outs.</p>
<p>So, yeah, bring on the full disclosure.  The only person I want to decipher my clinic trial data with is my doctor  - he is the only one who is as vested in my wellbeing as I am.  </p>
<p>The &#8220;us&#8221; versus &#8220;them&#8221; needs to stop, it is all &#8220;we&#8221;.</p>
<p>What a wicked web we weave, when OURSELVES we wish to deceive&#8230;</p>
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